Healthcare resource use in patients with interstitial cystitis/bladder pain syndrome: a survey of UK patients
BAUS ePoster online library. Ho M. 06/24/19; 259523; P3-9 Disclosure(s)(s): I am doing consultancy work for Consilient Health UK; I have done consultancy work in the past for Astellas Pharma Europe
Mr. Michael Ho
Mr. Michael Ho
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Interstitial cystitis (IC)/Bladder Pain Syndrome (BPS) is a poorly understood condition characterised by long-term pelvic pain; however data on this patient population in the UK are limited.

Patients (or Materials) and Methods
An online survey was administered through two charities: Bladder Health UK and Bladder & Bowel Community. Respondents were asked if they had been diagnosed with IC/BPS as well as healthcare resource use due to their condition in the previous 6 months.


252 patients completed the survey. In the previous 6 months, due to their BPS: 172 (68%) respondents saw their GP and 80 (32%) a primary care nurse at least once; 165 patients (65%) had one or more outpatient visits (mean number of visits 3.16; median 4.1; range 1-24); and 39 respondents (15%) reported being admitted to hospital due to their BPS.
71 (28% of all respondents) had a cystoscopy in the previous 6 months (18 had 2 and 3 respondents had 3); 49 of 71 were with hydrodistension under general anaesthetic.
Other procedures/treatments (carried out at least once) in the previous 6 months were: bladder distention in 34 respondents (13%) ; nerve stimulation 13 (5%); bladder installation 87 (49%); antibiotics 123 (49%); and bladder wall injections 12 (5%). 164 respondents (65%) reported taking oral medication.
The average total cost of treating patients with BPS, excluding drugs and treatment cost, over a 6 month period was £860.36.

In addition to high humanistic burden, this survey shows there is significant economic burden associated with BPS.
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